Helpful Resources

 

General Information on Alzheimer’s Disease and related disorders:

Community Events

  • The Massachusetts Alzheimer's Disease Research Center (MADRC) hosts an annual event to recognize those who participate in our research studies. Click here for 2020’s symposium where you can hear from researchers, study participants, and family members to learn about ongoing studies and ways you can get involved!

  • MADRC also hosts Memory Sunday, a faith based collaboration with local leaders, centered around raising awareness about Alzheimers and related disorders in the African American and Black communities. Click here to learn more about 2022’s Memory Sunday that occurred on 6/12/2022!

  • MADRC hosts periodic educational events regarding brain health, research participation, and more! Click here for their updated calendar!

    • In September 2020, MADRC recorded a helpful webinar answering frequently asked questions regarding participating in research.

    • In January 2023, MADRC and Dr. Arnold hosted a helpful webinar discussing the importance of research participation.

  • The Massachusetts and New Hampshire chapter of the Alzheimer’s Association hosts local events. Check out their event calendar here!

Other Research Opportunities

  • Learn about the different types of research studies by reading this helpful handout

  • Explore a range of research opportunities across all Partner’s Healthcare sites on Partner’s Rally for Research

  • The National Institute of Health ClinicalTrials.gov is a database of clinical trials around the world.

  • The Alzheimer’s Association TrialMatch tool is a matching service that can generate a list of suitable clinical trials based on patient characteristics.

Resources For Caregivers

  • MADRC has created A Road Map to Caregiving Guide, providing helpful information and support for caregivers!

  • MGH started the Dementia Care Collaborative to provide support to caregivers. Check out their website for more information.